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The little girl who is unable to say what she thinks due to rare ‘locked-in’ syndrome

Esm� Davison-Hoult who suffers from Rett Syndrome, pictured at her Wendover home with mum Abigail

Esm� Davison-Hoult who suffers from Rett Syndrome, pictured at her Wendover home with mum Abigail

The parents of a young girl who is unable to speak are raising money to help improve her rare condition.

Esmé Davison-Hoult, three, from Wendover has Rett Syndrome which affects only one in 12,000 children.

She often falls when walking, has limited hand use and quickly becomes tired at her Stanhope Close home.

The condition is known as ‘locked-in syndrome’ because Esmé’s brain development is normal for her age.

Her dad Anthony, 43, said: “I tell her friends to imagine Esmé as a pilot. Sometimes all the controls in her plane stop working and the microphone doesn’t work.”

Abigail, 41, said: “The odd word might pop out but she hasn’t said a recognisable word since half-term.

“She said Winnie the Pooh, clear as day, and was so happy I knew what she meant.”

Esmé is moving from Little Acorns in Wendover to a more specialist school – Booker Park – in September.

But before then, Anthony and Abigail hope to raise £5,000 to create a registered charity and secure equipment to help Esmé communicate.

They have held a curry night at The Raj in Wendover and are returning in May, with a golf day and black tie event planned for later this year.

For more on Esmé’s story visit her Facebook page

 

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